Sisters With Addison's Disease
Olivia was diagnosed with Addison's disease at almost 3 years old in July 2008. Little sister, Kinsley, was diagnosed with Addison's @ 7 months in Feb. 2011. We now know they were both born with it! Addison's Disease is an extremely rare disease occuring in about 1 in 400,000 people. Also called Adrenal Insufficiency, the adrenal glands do not produce cortisol. Cortisol is a hormone essential to life, and effects almost every organ in your body. It helps your body cope with any type of stress, both physical or mental. It often goes undiagnosed until an emergency situation called an Addisonian Crisis. With lifetime daily steriods (Hydrocortisone) both girls are expected to have normal, happy lives...just with a little extra precaution and lots of extra love. We are so thankful both our girls were disgnosed before it was too late.
Saturday, September 13, 2008
"Aunt" Dr Belton
For all of you that have never met Livvie's wonderful pediatrician, here she is. This is Dr Belton. Sad to say, but I can pretty much guarantee that she has seen her Dr more than most of our friends and family. In 2006 alone she saw Dr Belton and average of once a week. 51 times in all!!!
Dr Belton has been through it all with us. Starting from when Olivia was newborn and jaundice. Pretty much as soon as that cleared up, we were jumping in head first into this non stop medical hell that we have endured for the last 3 years. At first, it was almost like a joke, she would walk in and give us the "you have got to be kidding me" look. Somewhere within the last 2 years and 7 specialist, it became a look of horror and disbelief. I could feel the frustration that she felt in not being able to put her finger on what was going on, even with the help of every "ologist" she could think of. She said she often looked over Olivia's chart during lunch breaks and after hours, scratching her head and pondering what it could be. During Liv's hospital stays she would call from her home and check on us, asking for all the details and trying to play "quarterback" for us. She decoded tons of medical mumbo jumbo that was thrown at us by countless Dr's and I can honestly say that without her, we would be lost. We could not have asked for a better Doctor. She has been a God send.
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I agree, Dr. Belton sure knows Olivia. For a while, going to doctor's appointments were Olivia's only outings. Let's hope those days are behind us! She really seems to be doing so well. There's been such a change in her personality, that's what I find most remarkable. She's happy, talkative, energetic, and funny! You can just tell that she feels so much better. Of course, the medication does make her a little 'hyper' but I'm sure not complaining. Thank God that Dr. Belton kept searching for clues to Olivia's health mysteries and that she sent you to the specialists at Shand's! Thanks Dr. B.
Love, Mema
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