Sisters With Addison's Disease

Olivia was diagnosed with Addison's disease at almost 3 years old in July 2008. Little sister, Kinsley, was diagnosed with Addison's @ 7 months in Feb. 2011. We now know they were both born with it! Addison's Disease is an extremely rare disease occuring in about 1 in 400,000 people. Also called Adrenal Insufficiency, the adrenal glands do not produce cortisol. Cortisol is a hormone essential to life, and effects almost every organ in your body. It helps your body cope with any type of stress, both physical or mental. It often goes undiagnosed until an emergency situation called an Addisonian Crisis. With lifetime daily steriods (Hydrocortisone) both girls are expected to have normal, happy lives...just with a little extra precaution and lots of extra love. We are so thankful both our girls were disgnosed before it was too late.

Monday, September 8, 2008

EEG...Not fun!

Well, I took Livvie to have an EEG today. Boy...that was not fun! It has been about a year since her last one, the infamous 24 hour one. This one only lasted about an hour, including the 15 minutes it took for me to get her calmed down enough to sit still while they placed the electrodes on her head. About 20 in all! They use this disgusting paste/gel to stick them to her head. We spent 3 minutes blowing a windmill, followed by about 4 minutes of strobe lights. =) After all that, they said, "ok, she can go to sleep now". lol Ok...a lot easier said than done. After about 20 minutes, she fell asleep. ( I did too) lol Ten minutes later...she said, "ok, we're done". She just had to take all the electrodes off her head. The paste left her hair a wreck!

Anyway, we survived another EEG and are waiting for the results. We are hopeful that this one will come back normal. If so, she will have to have a 24 hour one. If that one is normal, than we should be able to start weening her off her seizure meds. Yay! Keep your fingers crossed!

1 comment:

Anonymous said...

I know taking Olivia for the EEG wasn't fun - I could hear her screaming from the waiting room! :(
Let's just hope this is another step on the path to improved health for Livvie. I'm really hoping the EEG results will allow her to be taken off the seizure medication and get rid of the nasty side effects. Poor little princess, she's had to endure too many doctor's visits.
Looking forward to happier days!
Love, Mema