Well, Livvie had her first WELL visit ever yesterday. Yep, that's right...her first in 3 years. lol Sad huh! Every time before, we were always in for some illness or recheck and they always wind up doing all the well visit things during those visits.
Sooo...this is how it went...Livvie is now 40 inches (95%) and 35 lbs. They tested her vision and unlike me, she seems to have perfect vision. Her blood pressure was great, 84/52 ( good news since we will have to keep an eye on it because of the Florinef, salt pill.) And a little added bonus...no co-pays for well visits! Yay!
Dr. Belton was happy to see Livvie in a great mood, which is a huge change from the old Livvie. She asked if it would be ok to share Olivia's story with the guest at a pediatric conference coming up. Of course, we agreed...if just one doctor has an "ah ha" moment and is able to diagnosis a child with Addison's...it will be well worth it. =) Liv's endocrinologist also asked permission to discuss Livvie at a national endo conference. He wanted before and after pics of her tongue and tan. What can I say...we always knew Liv was one of a kind...but apparently she is sparking quite an interest in the medical community.
Some other great news...I found a really great message board online that is for moms with children suffering from adrenal insufficiency. I have gotten tons of great advise, and about what to expect. It is a small group of about 10 moms, so they are all pretty close and all know each others stories. I am settling in nicely and it is so nice to hear from others with stories like ours.
Ok, so keep your fingers crossed...Dr Belton said she doesn't want to see us for a whole year! Other than Addison's related illnesses. We are really going to try to make it to our next well visit.
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