Sisters With Addison's Disease

Olivia was diagnosed with Addison's disease at almost 3 years old in July 2008. Little sister, Kinsley, was diagnosed with Addison's @ 7 months in Feb. 2011. We now know they were both born with it! Addison's Disease is an extremely rare disease occuring in about 1 in 400,000 people. Also called Adrenal Insufficiency, the adrenal glands do not produce cortisol. Cortisol is a hormone essential to life, and effects almost every organ in your body. It helps your body cope with any type of stress, both physical or mental. It often goes undiagnosed until an emergency situation called an Addisonian Crisis. With lifetime daily steriods (Hydrocortisone) both girls are expected to have normal, happy lives...just with a little extra precaution and lots of extra love. We are so thankful both our girls were disgnosed before it was too late.

Friday, September 26, 2008

Great news....I have nothing new to report!

Yep...it feels great to have nothing new to fill everyone in on. Livvie is doing great. We went back to her endocrinologist...and not much has changed since the last time. He kept all her meds the same and ordered a few new labs...but other than that, he was very happy with Olivia's progress. He was quite amused by her new silly personality. She was literally bouncing off the walls. =)

I guess this means we can take a little break from doctors for awhile. She doesn't have to go back to him for 2 1/2 months. Although she will be seen by Dr Davis, her neurologist, in October. I'll let ya know how that goes.

So, like I said....no news if good news, right! Liv amazes us everyday with her improvements. She really is a happy little girl now! We have been waiting too long for that!
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1 comment:

Anonymous said...

AMEN !

September 26, 2008 at 12:19 PM

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